Season II Episode 2: A Strong & Rare mama into Civic Action
Failed to add items
Add to Cart failed.
Add to Wish List failed.
Remove from wishlist failed.
Adding to library failed
Follow podcast failed
Unfollow podcast failed
Season II Episode 2: A Strong & Rare mama into Civic Action
-
Narrated by:
-
By:
About this listen
Feauturing Cristina Rosa Vargas, Strong & Rare Mama, Paralegal, and Award winner of the Sonofi 2022 torch awards. She has been featured in Rare Revolution magazine and had a pending article with Upstate medical. She is a mama into civic action as she spreads awareness of CLN2 disease. She is working on a petition to support FDA-approved medication for her son's diagnosis. As she continues to be a strong RDLA advocate she is striving to become a lawyer to support the Rare Disease Community.
Show highlights:
- Her Son's Journey with CLN2 and how she took steps to be a voice for her son and many other families
- Her impact award recognition and her dedication to continuing advocating
- Purpose in life as a parent and professional
Learn more about the work Cristina is doing by visiting the following links
- Link to live Sanofi watch party: Youtube Video,
- Link to campaign: Here, Link to FDA citizen petition docket,
- Featured on Rare Revolution magazine
To stay connected, visit me on Instagram (@Strongandrareparenting), and/or send me an email at info. strongeandrareparents.com
Support this Podcast: https://anchor.fm/strongandrareparentin