• S108: Family Advocacy

  • Apr 22 2025
  • Length: 39 mins
  • Podcast

S108: Family Advocacy

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  • Summary

  • In this heartfelt and informative episode, Kim Wardlow welcomes therapist and advocate Darran Zenger to explore the dynamics of family advocacy in the blind and low-vision community. Drawing from both professional expertise and personal experience living with Usher Syndrome, Darran dives into what it means to advocate for and within your family.
    From setting expectations and communicating evolving needs to building support systems and navigating shifting family roles, Darran offers practical strategies and emotional wisdom. The conversation also explores the emotional side of disability, the importance of peer connection, and the value of mental health support for both individuals and families.

    🕰️ Chapter Markers:
    00:00 – Welcome & Intro to the Advocacy Series
    01:20 – Meet Darran Zenger: Therapist and Advocate
    03:45 – Defining Family Advocacy in Context
    06:00 – Communication & Self-Advocacy Within the Family
    08:05 – Common Family Challenges and Emotional Struggles
    10:15 – Advocating for Inclusion in Everyday Life
    12:30 – Teaching Children Advocacy Through Lived Example
    14:35 – Balancing Support and Independence
    17:00 – Advocacy Through Layout, Routine & Environment
    19:00 – Empathy, Listening, and Perspective Shifts
    22:50 – Adapting to Progressive Vision Loss Over Time
    25:00 – Humor and Honesty in Self-Advocacy
    27:30 – Tools, Training, and Support for Families
    29:45 – Guide Dogs, Children, and Trust
    31:45 – Educating Without Exhaustion
    33:50 – Mental Health and the Need for Connection
    36:55 – Final Thoughts and Resources

    📬 Contact Information:
    📧 Email: contact@aftersight.org
    🌐 Website: www.aftersight.org
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