
Maria Mendoza's Story
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About this listen
- Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.
- Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT.
- Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs.
- Lack of privacy, understanding from teachers, and potential bullying from classmates can all contribute to the loss of dignity for the child with SCD.
- Education and awareness are crucial to ensure that employers, educators, and healthcare professionals are knowledgeable about the disease and can provide necessary support.
- Sickle cell disease affects individuals from various ethnicities and backgrounds.
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