Hacking Hypermobility

By: Two Bendy Mommas
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  • Summary

  • Hi! We’re Luna and Shelli, also known as The Two Bendy Mommas. We talk about the lived experience of those affected by the inherited connective tissue disorders, and its intersection with neurodiversity, elevating marginalized and intersectional voices for our community. Please note: Hacking Hypermobility is produced in its entirety by three disabled women in various stages of life and parenting adventures. New episodes are typically released biweekly from January through July.
    Two Bendy Mommas
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Hygiene & Healthy Living
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Episodes
  • 3.7 Help, I'm Alive: F is for Fuuuuuuuu

    3.7 Help, I'm Alive: F is for Fuuuuuuuu
    Apr 26 2025

    Oopsie!

    Shelli's YouTube
    Show more Show less
    38 mins
  • 3.6 Help I'm Alive: Dysfunction Junction

    3.6 Help I'm Alive: Dysfunction Junction
    Apr 12 2025

    Keywords

    brain, dysautonomia, executive functioning, personal journey, daily challenges
    Show more Show less
    11 mins
  • 3.5 Help, I'm Alive: D is for Dysplasia

    3.5 Help, I'm Alive: D is for Dysplasia
    Mar 29 2025

    If you are able, Shelli recommends watching this episode

    Summary

    In this episode, Luna discusses a groundbreaking study linking joint hypermobility and anxiety, highlighting the neurological underpinnings of these conditions.

    Shelli discusses aEDS, hip dysplasia, and shares more candid content from sessions with her physical therapist.

    Keywords

    hypermobility, anxiety, medical gaslighting, Ehlers-Danlos syndrome, dysplasia, neurological research, chronic pain, personal experiences, recovery, support

    References

    Kamboureli, Christina Niki; Rae, Charlotte; Gould Van Praag, Cassandra; Harrison, Neil A; Garfinkel, Sarah N; Critchley, Hugo; et al. (2025). Neural processes linking joint hypermobility and anxiety: key roles for the amygdala and insular cortex. University of Sussex. Journal contribution.

    EDS Society info on aEDS

    aEDS VUS info

    Links to specific assistive devices along with phots will be posted soon - it's Shelli's birthday weekend and the weather is looking good!
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    40 mins
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I very much appreciate you sharing your journeys.

This was profoundly helpful for me. I very much enjoyed hearing and relate to your stories.

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So helpful

It was so nice to hear this. I thought so many of these things I struggled with were just me. I really appreciate the advice with doctors. I was getting so depressed about the doctor interactions I have had. Thanks for the encouragement to self advocate. I really needed that. very informational.

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